Today we were having a good day. Dac was busy playing
with her toys, she had a snack and was her usual smiley self.
Then this happened.
you see Dac has Epilepsy but it is more than a word. This is my child this disease is affecting and many more children and adults. If you are hesitant to donate for research, advocate for treatments, support ,educate or to even pass a law
look into her eyes and explain why.
See the blood trickling from her mouth? She bit her tongue. Not a pretty sight
you want to see. Imagine if this was your child.
This is not the picture of my daughter i really want to share. I prefer this one
With Epilepsy you do not get to choose.
You have to watch your child in helpless fashion endure it and
to pray they come through it.
Dac's Mommy 
Reblogged this on Mixed Up Mommy and commented:
From a fellow TSC mom.
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Thanks so much for sharing Becky. if it changes one mind or directs someone to help it will be worth it. xx let me know if i can ever do the same.
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Bless you, Lisa, and your darling daughter. You are forever in our prayers xox
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ty
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thanks so much
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Bless you Lisa, you are a wonderful Mother. My husband of 36 years has TS. his has what they refer to as the mild form. He was very intellegent held very good management jobs, had the seizures under control. suddenly at age 65 (retirement age) he started losing weight, he. was always tall and slim. but the seizures started again. His brain has 2 large tubers at the base of his brain…. now on Hospice care, losing his memory, not the man I married. But I am so thankful I still have him. He has always took good care of us.. We don’t have any children with TS, Thank God…. I cannot imagine what you have lived though…Your sweet daughter has been very lucky to have you….you will have a special place in Heaven…..
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god bless your husband and you as well. thank you.
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